Personalised Care Toolkit: Self-Management

Supporting self-management is a continuous activity from diagnosis onwards and should be tailored to the individual and the different milestones in their life such as having a family or starting a new job or school.

Supporting people with IBD to self-manage can describe a number of activities from giving patient packs on diagnosis to developing personalised flare plans, and from providing information to supplementing conversations or learning opportunities through regular education days or structured courses.

You could consider if your patients could benefit from:

a structured education course - you may want to explore what is offered locally and how your service is able to refer into these programmes
education days run by your IBD service
tools - both digital and/or paper- that allow individuals to record and track their symptoms and how they are feeling.
additional information about their condition and how to manage day to day
Peer support - see what charity events and support are available

Resources

Crohn’s & Colitis UK Appointment Guide

This guide has been created to help people with IBD get the most out of their time with you during appointments, and focus on what matters to them.

Flare Card for people living with IBD

The patient flare card helps people with IBD to recognise signs of a flare, gives simple steps to follow during a suspected flare.

Stoma care resources

Ileostomy Association offers a range of resources and support for stoma care nurses including literature for waiting rooms or patient visits, quarterly journals to give to patients, trained Volunteers to speak to patients and attendance at meetings and open days to offer support.

Managing Fatigue

Resources to support healthcare professions to support patients to measure and monitor their fatigue

For further information, take a look at our reading list and click here for details about how personalised care is being delivered across the UK.

Don't forget to go back to our resources directory for resources about the other areas of self-management.

If you would like us to add a resource or link, or have any feedback please send us an email.