IBD UK is a partnership of 16 professional bodies, royal colleges and patient organisations working together to improve care and treatment for everyone affected by Inflammatory Bowel Disease. Their main aim is to ensure that everyone with IBD has consistent, safe, high-quality personalised care, whatever their age and wherever they live in the UK.
Formed in August 2017, their first priority was to develop and publish new IBD Standards that define what good care should look like for people with IBD. Since then, they have created a range of practical tools and resources to support implementation of the IBD Standards, assessed through a Benchmarking Tool.
Crohn’s & Colitis UK chairs IBD UK and acts as secretariat.
Please see the full list of organisations in IBD UK below:
Association of Coloproctology of Great Britain and Ireland
The Association of Coloproctology of Great Britain and Ireland (ACPGBI) is a group of 1000+ surgeons, nurses, and allied health professionals who advance the knowledge and treatment of bowel diseases in Britain and Ireland.
British Association for Parenteral and Enteral Nutrition
BAPEN is a Charitable Association that raises awareness of malnutrition and works to advance the nutritional care of patients and those at risk from malnutrition in the wider community.
The British Dietetic Association (BDA) is the only body in the UK representing the whole of the dietetic workforce. The BDA is a trade union and professional body representing the professional, educational, public and workplace interests of our members. Founded in 1936, they are one of the oldest and most experienced dietetic organisations in the world.
British Society of Gastroenterology
The British Society of Gastroenterology is focused on the promotion of gastroenterology and hepatology. It has over three and a half thousand members drawn from the ranks of physicians, surgeons, pathologists, radiologists, scientists, nurses, dietitians, and others interested in the field.
British Society of Gastrointestinal and Abdominal Radiology
The British Society of Gastrointestinal and Abdominal Radiology (BSGAR) is a Special Interest Group of the Royal College of Radiologists and provides a forum for imaging, intervention and research in the care of patients with abdominal disease.
British Society of Paediatric Gastroenterology, Hepatology and Nutrition
BSPGHAN is a society that brings together colleagues from a range of professional disciplines and is recognised by the Royal College of Paediatrics and Child Health (RCPCH) as the society responsible for this field of paediatric medicine. Membership stands at around 500 members, comprising consultants and specialist trainees in paediatric gastroenterology, hepatology and nutrition; affiliated health care professionals such as specialist dieticians, nurses, pharmacists, clinical psychologists and scientists.
CICRA: better lives for children with crohns and colitis
CICRA is the specialist charity for children and young people affected by Crohn’s and Colitis. They lead research into better treatments, support children and families with relevant information, work with health professionals to improve care and give children a voice to increase public understanding of Crohn’s and Colitis. They believe that all children deserve a childhood unlimited by inflammatory bowel disease.
Crohn's & Colitis UK is the UK's leading charity for Inflammatory Bowel Disease. They are a unique source of support and advocacy for people affected by the conditions, and a valuable and reliable source of high-quality information for organisations with a duty of care, and policymakers and commissioners who are responsible for shaping healthcare services. CEO Sarah Sleet is the Chair of IBD UK and the charity also provides the secretariat function for the alliance.
Ileostomy & Internal Pouch Association
Ileostomy and Internal Pouch Association, known as IA, has been specialising in supporting people living with an ileostomy since 1956. IA is a network of local groups offering local support to its membership, their families and carers, from coffee mornings and trips to information days and talks. In addition to IA’s flagship One2One Support, which endeavours to match patient to Support Volunteer in terms of age, gender, surgery and lifestyle preferences, IA offers a range of other services such as literature, a quarterly magazine, financial support to its membership, educational events and a voice to represent the patient living with an ileostomy or internal pouch.
Primary Care Society for Gastroenterology
The PCSG is the voice of primary care gastroenterology, a voice that is listened to by those making decisions which affect primary care. The PCSG is ideally placed to provide educational resources, advice and support through consultation with committee members and dialogue with its large and experienced membership. They are a primary care organisation with a healthy curiosity for all things alimentary, who pride themselves on the excellence of the education they offer, which encompasses leading edge research to top tips for the practising physician.
RCGP is the professional membership body for family doctors in the UK and overseas, committed to improving patient care, clinical standards and GP training.
The Royal College of Nursing is the world’s largest nursing union and professional body, representing close to half a million nurses, student nurses, midwives and nursing support workers in the UK and internationally. As a member-led organisation, they work collaboratively with their members to influence governments and other bodies, improve working conditions, and campaign on issues to raise the profile of the nursing community.
The Royal College of Pathologists is a professional membership organisation with charitable status, concerned with all matters relating to the science and practice of pathology. It is a body of its Fellows, Affiliates and trainees, supported by the staff who are based at the College's London offices. The College is a charity with over 11,000 members worldwide. The majority of members are doctors and scientists working in hospitals and universities in the UK.
The Royal College of Physicians (RCP) is a professional membership body for physicians that supports the work they do by providing, among other activities, advocacy, examinations, education and training, and membership support.
The RPS is the professional membership body for pharmacists and pharmacy. Their mission is to put pharmacy at the forefront of healthcare and their vision is to become the world leader in the safe and effective use of medicines. Since RPS was founded in 1841 they have championed the profession, and are internationally renowned as publishers of medicines information. They promote pharmacy in the media and government, lead the way in medicines information, and support pharmacists in their education and development.
UK Clinical Pharmacy Association
UKCPA is a not-for-profit organisation which provides opportunities for networking, collaborations, sharing best practice and inspiring innovation. They provide practitioner-led education and training for the pharmacy workforce, and are accredited as a training provider by the professional body for pharmacy in Great Britain, the Royal Pharmaceutical Society.
