Privacy Policy

IBD UK is a partnership of patient and professional organisations working together to improve standards of care and treatment for everyone with Inflammatory Bowel Disease. Partner organisations include:

On behalf of IBD UK, Crohn’s & Colitis UK is responsible for the IBD UK website. No personal data is captured on this website apart from cookies, which is governed by a specific Cookie Policy for this website.

On behalf of IBD UK, the IBD Registry is responsible for the patient survey and benchmarking tool, and therefore these digital elements of IBD UK are subject to the IBD Registry's privacy policy and data protection policy. The IBD Registry is the Data Controller for the personal information we process, unless otherwise stated. Personal information will not be shared with other organisations, including those in IBD UK, without obtaining prior consent from the person(s).

The IBD Registry's Privacy Policy tells you what to expect us to do with your personal information when you make contact with us. We’ll tell you:

  • why we are able to process your information
  • what purpose we are processing it for
  • whether you have to provide it to us
  • how long we store it for
  • whether there are other recipients of your personal information
  • whether we intend to transfer it to another country, and
  • whether we do automated decision-making or profiling

More information

If you want to find out more about how we keep your data safe and secure, you can contact the IBD Registry by email on, or by post at IBD Registry, 1 St Andrews Place, London NW1 4LB.

The IBD Registry’s ICO registration number is ZA334069 and our Data Protection Officer is Adam Spinks, who can be contacted by email or at the postal address given above.