Reading list

If you are interested in reading more widely about personalised or person-centred care we have put together a reading list. There is a mixture of generalised and IBD specific papers, articles and books, as well as resources that are specific to England, Northern Ireland, Scotland, and Wales.

IBD and personalised care

Crohn’s & Colitis UK. (2020) Living well with IBD. Last viewed 03/02/21.

IBD UK. (2021). IBD UK National Report. Hatfield, Crohn’s & Colitis UK.

Royal College of Physicians. (2009-2016) UK IBD Audit Programme. Last viewed 03/02/21.

Personalised or person-centred care

Coulter A et al. (2015). ‘Personalised care planning for adults with chronic or long-term health conditions’. The Cochrane Library, (3) CD010523.

Kings Fund. (2013). Delivering better services for people with long-term conditions – building the House of Care. Last viewed on 03/02/21.

National Voices (2013) The narrative for person centred coordinated care. Last viewed on 03/02/21.

National Voices. (2013). Guide to care and support planning. Last viewed on 03/02/21.

RCGP. (2011). Care Planning, Improving the lives of people with long term conditions. Last viewed on 03/02/21.

RCGP. (2020). About care planning. Last viewed on 03/02/21.

Year of Care Partnerships. (2014). Impact and benefits. Last viewed on 03/02/21.

Year of Care. (2011). Report of findings from the pilot programme. Last viewed on 03/02/21.

Shared decision making

Better Conversation, Better Health: Health Coaching. (2021) Last viewed on 03/02/21.

Crohn’s & Colitis UK. (2019). How personalised care can improve people’s experience of Crohn’s and Colitis. Last viewed on 03/02/21.

Health Foundation. (2013). Implementing shared decision-making Clinical teams’ experiences of implementing shared decision making as part of the MAGIC programme. Last viewed on 03/02/21.

NHS England (2014) Five year forward view.

NICE. (2018). NICE decision aids: process guide. Last viewed on 03/02/21.

NICE. (2021). NICE Guidelines on Shared Decision Making. Last viewed on 03/02/21.

Person-Centred Approaches: Empowering people in their lives and communities to enable an upgrade in prevention, wellbeing, health, care and support. Last viewed on 03/02/21.

The General Medical Council. (2017). Generic professional capabilities framework. Last viewed on 03/02/21.

Supported self-management

Entwistle, V.A., Cribb, A. & Owens, J. (2018). ‘Why Health and Social Care Support for People with Long-Term Conditions Should be Oriented Towards Enabling Them to Live Well’. Health Care Anal, (26) 48–65.

Health and Social Care Alliance Scotland (2020) A Decade of IMPACT: 10 Years of Scotland’s Self Management Fund. Last viewed on 03/02/21.

Health and Social Care Alliance Scotland. (2018). The Future of Self Management: A Four Nations Summit’ learning report. Last viewed 03/02/21.

IPPR. (2014). Patients in Control: Why people with long-term conditions must be empowered. Last viewed on 03/02/21.

Nesta. (2013). The business case for people powered health. Last viewed on 03/02/21.

Nesta. (2016). Realising the value: Supporting self-management; A guide to enabling behaviour change for health and wellbeing using person- and community-centred approaches. Last viewed on 03/02/21.

The Health Foundation. (2011). Helping people help themselves: a review of the evidence considering whether it is worthwhile to support self-management. Last viewed on 03/02/21.

The Health Foundation. (2011). Helping people help themselves: a review of the evidence considering whether it is worthwhile to support self management. Last viewed 03/02/21.

The Kings Fund (2014). Supporting people to manage their health: An introduction to patient activation.

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