What are the IBD Standards and why do they matter?

The 2019 IBD Standards define what high-quality care for people with Crohn’s and Colitis should look like. They are a framework of statements, collaboratively produced by patients and professionals, and launched by IBD UK – a partnership of patient and professional organisations working together for everyone affected by Inflammatory Bowel Disease.

The IBD Standards say what high-quality, personalised care should look like at every point of the patient journey – from first symptoms, to treatment and ongoing care – and how IBD services need to be organised.

The IBD Benchmarking Tool – made up of the Service Self-Assessment and the IBD Patient Survey - aims to address variations in the quality and consistency of care people with Crohn’s and Colitis currently receive in the UK.

Over 10,000 patients in 99% of IBD services across the UK completed the IBD Patient Survey and 72% of IBD services completed the self-assessment. The combination of patient views and comparison against the IBD Standards provides a powerful and unique opportunity to push up standards of care for everyone with IBD.

IBD UK recognises that services across the UK are working hard to deliver consistent, high-quality care for people living with Crohn's and Colitis. While variations currently exist, the IBD Benchmarking Tool aims to help services to identify where resources should be directed in ongoing Quality Improvement, and to help show commitment to your patients’ views and needs, ensuring your patients benefit from a high-quality service.

IBD UK believes in an open, transparent approach to sharing successes while recognising where services need to focus on improvement, helping to build a strong relationship with patients who use IBD services. IBD UK believes that a partnership approach is fundamental for IBD services across the UK to meet the IBD Standards – everybody needs to be involved to make a difference.