Many people are waiting too long for a diagnosis of Inflammatory Bowel Disease (IBD). This is distressing for those who are waiting, with often painful and debilitating symptoms and no effective treatment. It’s also costly for the NHS as delayed diagnosis results in higher likelihood of surgery, more expensive treatments and a poorer prognosis. It can be difficult for GPs to identify potential IBD as the symptoms overlap with other conditions, such as irritable bowel syndrome, and can be atypical, especially in children. Clear pathways and protocols can speed up diagnosis and lead to better patient outcomes.

Who's doing it well?

We spoke to Beverley Kirkham, Lead Clinical Nurse Specialist for IBD at Kingston Hospital, to find out about their new endoscopy algorithm.

What was the problem?

Patients were having investigations with no adequate treatment started, or with follow-up not initiated. This led to a poor experience and poor outcomes for them, which had a negative effect on the patients, the staff, and the Trust.

What were the barriers to change?

Engaging colleagues, navigating governance processes, and educating service users.