Specialist-led care and holistic assessment

Specialist-led care and holistic assessment

Statement 3.1

All newly diagnosed IBD patients should be seen by appropriate specialists from the IBD multidisciplinary team.

Statement 3.2

Following diagnosis, all patients should have a full assessment of their disease activity, nutritional status, mental health, fatigue and extra intestinal manifestations. This should include growth status for children and teenagers and an infection screen for patients likely to require immunomodulators, targeted small molecules or biologics.

Why is it important?

Every patient is different, so their initial assessment should be personalised, based on their physical, social and emotional needs.

Getting specialist assessment at diagnosis is also key to ensuring patient-centred care on an ongoing basis.

The initial assessment should be multidisciplinary and holistic, taking in the major concerns of patients, family or carer(s), to help identify the immediate and long-term impact of the condition on their wellbeing. However, in the latest IBD Patient Survey, only 31% of adults with IBD reported being asked about conditions beyond their gut.

A holistic assessment should include:

  • Expert establishment of disease activity and distribution
  • Complementary investigation to establish a full and correct diagnosis
  • Assessment of malnutrition and malabsorption – this should involve nutrition screening, then providing sources of general dietary advice or referral to specialist dietary support for patients at risk of malnutrition, with stricturing disease, or those with further dietary concerns
  • Immunisation and tuberculosis (TB) status
  • Assessment of fatigue and iron deficiency status
  • Assessment of continence concerns
  • Any extraintestinal manifestations such as skin, joints, eyes
  • Advanced pain assessment
  • Risk identification including osteoporosis, stopping smoking, colorectal cancer, serious psychological distress
  • Identification of realistic treatment plan and targets with patient, family and carers

The patient’s psychological needs should also be considered, including:

  • Awareness of the impact of IBD on their sex life and sexual function
  • Referral or signposting to suitable psychological therapies if necessary