Personalised Care Toolkit: Signposting and Peer Support

Personalised Care Toolkit: Signposting and Peer Support

Peers and the voluntary sector can be a highly valued source of support throughout someone’s life with IBD.

Peer support can help people feel more knowledgeable, confident and happy, and less isolated and alone

Voluntary organisation can offer valuable services, tools and support – from practical, high quality information, including packs specifically designed for people who are newly diagnosed, to helplines and local networks of people in a similar situation.

Consider whether the person living with IBD you are caring for could benefit from:

  • talking to or meeting with others with a similar condition?
  • prescribing a programme that could bring them into contact with more people in their community and having new experiences (social prescribing)?
  • being able to access further information and support about self-management and living well outside their clinic appointments?

Founded as a patients’ association in 1979, the charity now has over 40,000 members across the UK. Crohn’s & Colitis UK provide high quality information and practical support through award-winning information and a helpline. They work with the UK health sector to improve diagnosis, treatment and management of IBD, support life-changing research and campaign to raise awareness.

  • National Helpline: Gives support and information about living with IBD.
  • Find your local network: Opportunities to meet new people who also living with IBD.
  • Parent to Parent Helpline: Volunteer led peer support for parents with children under the age of 25 living with IBD.
  • Crohn’s & Colitis UK Facebook forum: Closed/private online community for people with IBD.

Peer support in health and care encompasses a range of approaches through which people with similar long-term conditions or experiences support each other in order to better understand the condition and aid recovery or self management.