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The IBD Patient Survey - Help reveal the true picture of life with IBD since COVID-19

The IBD Patient Survey is live.

We need everyone living with Inflammatory Bowel Disease (IBD) to tell us their experiences of treatment and care to establish the first accurate picture of IBD care and treatment in the UK since before the COVID-19 pandemic. This is the first step to improving IBD services.

People living with IBD can now have say their say anonymously on whether their care and treatment for IBD is personalised, high-quality, safe, and consistent.

IBD UK is a partnership of 17 patient and professional organisations working together to improve care and treatment for everyone affected by Inflammatory Bowel Disease. Formed in August 2017, their first priority was to develop and publish new standards that define what good care should look like for people with IBD.

IBD UK believes that everyone with IBD deserves consistent, safe, high-quality personalised care, whatever their age and wherever they live.

The Patient Survey is an opportunity for everyone living with IBD to anonymously share their experiences so that IBD UK can establish the first comprehensive picture of IBD care and treatment in the UK since the pandemic.

Your data will be held safely and securely by the IBD Registry, who are collecting the anonymous survey responses on behalf of IBD UK. Find out more here.

With this survey, we want to reach an audience that is representative of the population of people living with IBD. To achieve this, we are going to need people to help us by sharing it with their networks, so we have prepared a Comms Toolkit with assets you can use to promote the survey, and if you would like to suggest an idea for how you can help promote the survey, or request some leaflets or posters, please contact info@ibduk.org. If you have any questions, hopefully this FAQ will have the answer.