A reading list on personalised or person-centred care

If your interested in reading more widely about personalised or person-centred care we have pulled together a ‘starter’ reading list. There is a mixture of generalised and IBD specific papers, articles and books, as well as resources that are specific to England, Northern Ireland, Scotland, and Wales.

IBD and personalised care

Crohn’s & Colitis UK. (2019) Blog: Is the future of medicine personalised? Last viewed 03/02/21. <https://www.crohnsandcolitis.org.uk/news/is-the-future-of-medecine-personalised>

Crohn’s & Colitis UK. (2020) Living well with IBD- Personalised IBD Care. Last viewed 03/02/21. <https://www.google.com/search?q=Living+well+with+IBD&ie=&oe=>

IBD UK. (2021). IBD UK National Report. Hatfield, Crohn’s & Colitis UK.

Royal College of Physicians. (2009-2016) UK IBD Audit Programme. Last viewed 03/02/21. <https://www.rcplondon.ac.uk/projects/ibd-programme>

Personalised or person-centred care

Coulter A et al. (2015). ‘Personalised care planning for adults with chronic or long-term health conditions’. The Cochrane Library, (3) CD010523.

Kings Fund. (2013). Delivering better services for people with long-term conditions – building the House of Care. Last viewed on 03/02/21. <https://www.kingsfund.org.uk/sites/default/files/field/field_publication_file/delivering-better-services-for-people-with-long-term-conditions.pdf>

National Voices (2013) The narrative for person centred coordinated care. Last viewed on 03/02/21. <https://www.nationalvoices.org.uk/publications/our-publications/narrative-person-centred-coordinated-care>

National Voices. (2013). Guide to care and support planning. Last viewed on 03/02/21. <https://www.nationalvoices.org.uk/publications/our-publications/care-and-support-planning-guide>

RCGP. (2011). Care Planning, Improving the lives of people with long term conditions. Last viewed on 03/02/21. < https://camdengp.co.uk/wp-content/uploads/2015/02/Improving-the-lives-of-people-with-Long-term-Conditions.pdf >

RCGP. (2020). About care planning. Last viewed on 03/02/21. <https://www.rcgp.org.uk/clinical-and-research/our-programmes/about-person-centred-care.aspx>

Year of Care Partnerships. (2014). Impact and benefits. Last viewed on 03/02/21. <https://www.yearofcare.co.uk/impact-and-benefits>

Year of Care. (2011). Report of findings from the pilot programme. Last viewed on 03/02/21. <www.yearofcare.co.uk/sites/default/files/images/YOC_Report%20-%20correct.pdf>

Shared decision making

Better Conversation, Better Health: Health Coaching. (2021) Last viewed on 03/02/21. <https://www.betterconversation.co.uk/>

Crohn’s & Colitis UK. (2019). How personalised care can improve people’s experience of Crohn’s and Colitis. Last viewed on 03/02/21. <https://www.crohnsandcolitis.org.uk/healthcare-professionals/healthcare-professionals-blog/personalised-care-for-people-living-with-crohns-and-colitis>

Health Education England, Skills for Health, and Skill for Care. (2017).

Health Foundation. (2013). Implementing shared decision-making Clinical teams’ experiences of implementing shared decision making as part of the MAGIC programme. Last viewed on 03/02/21. <https://www.health.org.uk/publications/implementing-shared-decision-making >

NHS England (2014) Five year forward view www.england.nhs.uk/ourwork/futurenhs/

NICE. (2018). NICE decision aids: process guide. Last viewed on 03/02/21. https://www.nice.org.uk/Media/Default/About/what-we-do/our-programmes/nice-guidance/shared-decision-making/decision-aid-process-guide.pdf

NICE. (2021). NICE Guidelines on Shared Decision Making. Last viewed on 03/02/21. <https://www.nice.org.uk/about/what-we-do/our-programmes/nice-guidance/nice-guidelines/shared-decision-making

Person-Centred Approaches: Empowering people in their lives and communities to enable an upgrade in prevention, wellbeing, health, care and support. Last viewed on 03/02/21. https://skillsforhealth.org.uk/wp-content/uploads/2021/01/Person-Centred-Approaches-Framework.pdf

The General Medical Council. (2017). Generic professional capabilities framework. Last viewed on 03/02/21. <https://www.gmc-uk.org/education/standards-guidance-and-curricula/standards-and-outcomes/generic-professional-capabilities-framework >


Supported self-management

Crohn’s & Colitis UK. (2018) Position statement on self-management. Last viewed on 03/02/21. <https://crohnsandcolitis.org.uk/improving-care-services/self-management/self-management-position-statement>

Entwistle, V.A., Cribb, A. & Owens, J. (2018). ‘Why Health and Social Care Support for People with Long-Term Conditions Should be Oriented Towards Enabling Them to Live Well’. Health Care Anal, (26) 48–65. https://doi.org/10.1007/s10728-016-0335-1

Health and Social Care Alliance Scotland (2020) A Decade of IMPACT: 10 Years of Scotland’s Self Management Fund. Last viewed on 03/02/21. <https://www.alliance-scotland.org.uk/self-management-and-co-production-hub/wp-content/uploads/2019/06/A-Decade-of-Impact-report-10.05.19-DIGITAL.pdf>

Health and Social Care Alliance Scotland. (2018). The Future of Self Management: A Four Nations Summit’ learning report. Last viewed 03/02/21. <https://www.alliance-scotland.org.uk/blog/news/the-future-of-self-management-a-four-nations-summit/>

IPPR. (2014). Patients in Control: Why people with long-term conditions must be empowered. Last viewed on 03/02/21. <https://www.ippr.org/publications/patients-in-control-why-people-with-long-term-conditions-must-be-empowered>

Nesta. (2013). The business case for people powered health. Last viewed on 03/02/21. <www.nesta.org.uk/sites/default/files/the_business_case_for_people_powered_health.pdf>

Nesta. (2013). The business case for people powered health. Last viewed 03/02/21. www.nesta.org.uk/sites/default/files/the_business_case_for_people_powered_health.pdf

Nesta. (2016). Realising the value: Supporting self-management; A guide to enabling behaviour change for health and wellbeing using person- and community-centred approaches. Last viewed on 03/02/21. < https://www.nesta.org.uk/report/supporting-self-management-a-guide-to-enabling-behaviour-change-for-health-and-wellbeing-using-person-and-community-centred-approaches/ >

The Health Foundation. (2011). Helping people help themselves: a review of the evidence considering whether it is worthwhile to support self-management. Last viewed on 03/02/21. <www.health.org.uk/publications/evidence-helping-people-help-themselves/>

The Health Foundation. (2011). Helping people help themselves: a review of the evidence considering whether it is worthwhile to support self management. Last viewed 03/02/21. <www.health.org.uk/publications/evidence-helping-people-help-themselves/>

The Kings Fund (2014). Supporting people to manage their health: An introduction to patient activation. < https://www.kingsfund.org.uk/publications/supporting-people-manage-their-health>

Year of Care. (2011). Report of findings from the pilot programme. Last viewed 03/02/21. www.yearofcare.co.uk/sites/default/files/images/YOC_Report%20-%20correct.pdf 28